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- European Patients’ Academy Blog
The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
Our new weekly blog is for you to get to know us better. But really. We’re going to tell you not only why we believe in patient engagement at all levels of health care systems but why it’s in everyone’s best interest to know more about taking better care of themselves by knowing more about the medicines research process, and how it directly connects to them. We have a Communications Team of 11 people, each of whom will talk to you about something intimate for them, hopefully something inspiring for you.
A classroom session during Barcelona. Along with 14 classroom participatory lectures, the students took part in 6 small groups and 3 interactive sessions for a total of 34 learning hours. Overview here.
Margaret Mullarney from move4parkinsons explains why dance is so important to her to control the advancement of her disease "backed by randomised clinical trials". She'll be dancing until she's cured. More here on our Dublin workshop. Part 1.
Participants in our Patient Expert course helping out in our Twitter Cafe in Dublin. Thanks, everyone! More on social media and our national groups here.
See the outline of those sessions here:
While patient-centric approaches to research and development are gaining in popularity, another challenge is starting to present itself: how can patients engage with researchers in such a way that they work more as partners? In its article "Training on trials: Patients taught the language of drug development", the jounral Nature Medicine reports about EUPATI and how it empowers patients to be advocates in medicines R&D. Read the article here.