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The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
We are now halfway through our 5-year journey on making an information resource that educates patient advocates, patients and the broader public about how medicines research and development works, and your part in it.
The first 14 slides (18 minutes) summarize the overall goals and objectives of the European Patients' Academy, while the final 18 slides (slides 15-33, 22 minutes) cover recent progress and current activities.
The European Patients' Academy is identifying and collecting new teaching methodologies and will provide guidance on the use of media, information technology and other teaching materials to non-expert patients and the public at large.
We are hoping to collect information about existing methodologies or strategies under development. Please let us know if you are aware of any ongoing projects, documents or other types of activities or information concerning new learning/teaching methodologies for lay audiences, including those targeted to hard-to-reach audiences and vulnerable populations.
Please fill out the short form at the following link:
Please feel free to forward this link to any relevant contact that could provide further information. Thank you very much!
On 26 May 2014, the German news magazine SPIEGEL published an article addressing the issue of donations from pharmaceutical companies to patient organisations. The article also addresses concerns about EUPATI's objectivity and independence, while it also stresses the lack of technical knowledge of patients to be independent partners of stakeholders in healthcare. However, empowering patients to engage as independent and equal partners in medicines research in development is in fact the key objective of EUPATI, supported by distinct measures to ensure objectivity and transparency without getting involved with specific diseases or treatments.
We wanted to explore the public’s knowledge, attitudes and understanding of medicines development; at the same time, we explored the public’s current awareness of and level of involvement in medicines development; finally, we tried to explore the public’s information needs and preferences for different types of information resources vis-a-vis medicines development.
In the following infographics, we show the combined results on a European level as well as for 6 countries - France, Germany, Italy, Poland, Spain, UK. All participants were aged 18 years and over. In total, 7000 members of the public were reached with the survey (2000 in the UK and 1000 in all other countries).
Do you want to learn more about the research and development of medicines? The European Patients’ Academy is inviting people to join the Network. Membership to the Network is free and open to anyone interested in finding information on medicines research & development. The Network offers members the following benefits:
You can join the European Patients’ Academy Network today by registering at http://www.patientsacademy.eu/register