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- European Patients’ Academy Blog
The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
Our new weekly blog is for you to get to know us better. But really. We’re going to tell you not only why we believe in patient engagement at all levels of health care systems but why it’s in everyone’s best interest to know more about taking better care of themselves by knowing more about the medicines research process, and how it directly connects to them. We have a Communications Team of 11 people, each of whom will talk to you about something intimate for them, hopefully something inspiring for you.
Our upcoming EUPATI webinar “How to enable meaningful patient contribution to ethical review?" will provide an opportunity to hear current experiences and expectations and to discuss your questions and suggestions on the 5th of March at 17:00 hours until 18:30 CET.
You need to be a Network member to join in. If you already are, please register here.
If you are not yet a Network member (free and easy!), please sign up here.
We are now halfway through our 5-year journey on making an information resource that educates patient advocates, patients and the broader public about how medicines research and development works, and your part in it.
From theory to reality.
We wanted to explore the public’s knowledge, attitudes and understanding of medicines development; at the same time, we explored the public’s current awareness of and level of involvement in medicines development; finally, we tried to explore the public’s information needs and preferences for different types of information resources vis-a-vis medicines development.
In the following infographics, we show the combined results on a European level as well as for 6 countries - France, Germany, Italy, Poland, Spain, UK. All participants were aged 18 years and over. In total, 7000 members of the public were reached with the survey (2000 in the UK and 1000 in all other countries).