The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
The European Patients' Academy is proud to open its doors to our first "Patient Experts Training Course"! We offer a full-range course on Medicines Research and Development for any Patient or Patient Representative interested in becoming more involved. The course will be a mixture of online and face-to-face education modules over a 13-month period, beginning September 2014.
Voice your opinions, share your thoughts! We strongly encourage open and active dialogue!
To find out more about the full agenda and to register, please go to www.eupati2014.com.
For our first Newsletter of 2014, we have two outstanding interviews, one with the leader of the project, Jan Geissler, who I spoke to recently in Brussels, and another with the leaders of our Content Development working group, Jytte Lyngvig and Matthew May from DIA. We also have an important update from our Sustainability working group. Remember: you can become more involved and support our efforts by providing your insight, and stay informed! Read more
IMI, the Innovative Medicines Initiative, published its year-end report, Newsletter #30, and they mention EUPATI among many other IMI inititatives. They will be having IMI webinars the week of 7 January to help with the new 11th call for project proposals, as well as how to find the right partners for your new project! Please go here for the full Newsletter.
Our final Newsletter for 2013 is a short note of thanks for all the hard work gone into the project this year, with lots of warm wishes for the holidays and to start 2014 on the best footing! Many of our Working Group leaders and managers give us a quick review of what happened in 2013 and what we can look forward to in 2014. Read more
Genetic Alliance UK and researchers at the University of South Wales want to understand how patients perceive the risks and benefits of medicines. This European research study is important to ensure that patient views are valued in the regulation of new medicines.
If you are 18 or older, and you are a patient or a carer, you can help us by completing a short online survey. The survey includes questions about your experience with medicines, your view of the risks and benefits associated with medicines, and how you think medicines should be regulated. The survey is available in several different languages. To complete the survey now please click on/go to one of the links below:
After extensive discussions and consultation with advisors, EUPATI has achieved a major milestone by publishing its first version of the syllabus for the certificate training programme. This university-style programme for 100 'patient experts' will blend face-to-face and online learning in six modules over 18 months. Development of the course material has begun and courses are expected to start in summer 2014.
The Network is for patients and patient organisations, caregivers, academia, pharmaceutical & biotech companies, journalists, and anyone else interested in information on medicines research & development in understandable language. Membership in the network is free! Being a member of the EUPATI Network provides the following benefits: