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The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
While patient-centric approaches to research and development are gaining in popularity, another challenge is starting to present itself: how can patients engage with researchers in such a way that they work more as partners? In its article "Training on trials: Patients taught the language of drug development", the jounral Nature Medicine reports about EUPATI and how it empowers patients to be advocates in medicines R&D. Read the article here.
We are now halfway through our 5-year journey on making an information resource that educates patient advocates, patients and the broader public about how medicines research and development works, and your part in it.
From theory to reality.
We wanted to explore the public’s knowledge, attitudes and understanding of medicines development; at the same time, we explored the public’s current awareness of and level of involvement in medicines development; finally, we tried to explore the public’s information needs and preferences for different types of information resources vis-a-vis medicines development.
In the following infographics, we show the combined results on a European level as well as for 6 countries - France, Germany, Italy, Poland, Spain, UK. All participants were aged 18 years and over. In total, 7000 members of the public were reached with the survey (2000 in the UK and 1000 in all other countries).