The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
EUPATI's newsletter #8 (November 2013) has just been published. This month we remind you to save the dates of our next meeting in Warsaw, we take a closer look at DIA, who is leading the Contents Development working group, we introduce you to ISPOR and pharmacoeconomics, and we update you on our survey work. Read it here.
The European Patients' Academy is delighted to announce its 2014 Workshop entitled “EUPATI: Reaching the General Public on Medicines Development”. Our Workshop (2 April, 2014) in Warsaw, Poland, will address our concepts on how best to inform patients and patient representatives as well as the broader citizen community in order to raise Europe-wide public awareness of how new medical treatments are developed.
We are working on the identification of successful models of partnerships of patients/patient organisations with academia and/or industry. The aim is to provide a catalogue/repository of such Public Private Partnership (PPP) models and use this for the development of guidance for future PPPs, addressing the need for more active involvement of patient experts in medicines research and development.
Welcome to our monthly European Patients' Academy newsletter, with up-to-date reports from the EUPATI project. We provide updates on our work in needs assessment, content development, the new website, some feedback from our Rome conference along with a re-opening of our call for more partnership examples. Please continue to support our efforts and stay informed!
We are continuing our efforts to look for examples of patients, advocates and patient organisations successfully working with academia and/or the pharmaceutical industry to include in our catalogue of Public Private Partnerships (PPP). Your input will help us in developing future guidance addressing the need for more active involvement of patients and patient advocates in medicines R&D as well as being the first-ever publicly accessible collection of its kind! Provide us with some details here. Many thanks!
After extensive discussions and consultation with advisors, EUPATI has achieved a major milestone by publishing its first version of the syllabus for the certificate training programme. This university-style programme for 100 'patient experts' will blend face-to-face and online learning in six modules over 18 months. Development of the course material has begun and courses are expected to start in summer 2014.
The Network is for patients and patient organisations, caregivers, academia, pharmaceutical & biotech companies, journalists, and anyone else interested in information on medicines research & development in understandable language. Membership in the network is free! Being a member of the EUPATI Network provides the following benefits: