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The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees. More about the Patients' Academy
Our new weekly blog is for you to get to know us better. But really. We’re going to tell you not only why we believe in patient engagement at all levels of health care systems but why it’s in everyone’s best interest to know more about taking better care of themselves by knowing more about the medicines research process, and how it directly connects to them. We have a Communications Team of 11 people, each of whom will talk to you about something intimate for them, hopefully something inspiring for you.
This week, Rob Camp
The European Patients' Academy is launching a series of webinars designed for our network members on topics of interest and importance to you, patients, patient representatives and their families.
Our first webinar is scheduled for November 5 at 17:00 CET and will discuss improving the involvement of patients in clinical research activities. This was the focus of a workshop hosted by EUPATI in July [please click here].
We would like to explore the specific aspects of involvement in clinical research: at all different stages of the drug development process, and even beyond being a participant in a clinical trial. We welcome receiving your insights, comments and questions in the webinar which will help us seek a broader opinion and form a stronger, more informed voice.
This is a great opportunity to share your perspective on the ‘patient centricity’ debate. If you wish to attend this webinar please register using our online form by October 24. You will receive pre-reading, the agenda and instructions on how to join. Please note the webinar will be conducted in English and for 90 minutes.
We are now halfway through our 5-year journey on making an information resource that educates patient advocates, patients and the broader public about how medicines research and development works, and your part in it.
The European Patients' Academy is identifying and collecting new teaching methodologies and will provide guidance on the use of media, information technology and other teaching materials to non-expert patients and the public at large.
We are hoping to collect information about existing methodologies or strategies under development. Please let us know if you are aware of any ongoing projects, documents or other types of activities or information concerning new learning/teaching methodologies for lay audiences, including those targeted to hard-to-reach audiences and vulnerable populations.
Please fill out the short form at the following link:
Please feel free to forward this link to any relevant contact that could provide further information. Thank you very much!
We wanted to explore the public’s knowledge, attitudes and understanding of medicines development; at the same time, we explored the public’s current awareness of and level of involvement in medicines development; finally, we tried to explore the public’s information needs and preferences for different types of information resources vis-a-vis medicines development.
In the following infographics, we show the combined results on a European level as well as for 6 countries - France, Germany, Italy, Poland, Spain, UK. All participants were aged 18 years and over. In total, 7000 members of the public were reached with the survey (2000 in the UK and 1000 in all other countries).