(OECD Global Science Forum, October 2011, page 22) "The influence of patients on the clinical research itself remains limited, despite the fact that patients may contribute importantly to the value and quality of specific clinical trials – for example, by helping to define relevant parameters to monitor throughout a clinical study, which have significance for the patient’s quality of life. Initiatives like the EUPATI-project (European Patients Academy on Therapeutic Innovation), which aims to educate patient advocates and the lay public about therapeutic innovation, deserve to be analysed in more detail." See full report