The European Infrastructure for Translational Medicine (EATRIS) and the European Patients’ Academy on Therapeutic Innovation (EUPATI) have signed a partnership agreement, demonstrating both organisations’ commitment to provide education and training opportunities in translational research for patient advocates and strengthen academic researchers’ capacities to effectively engage with patients in their research. Supported by 13 EU Member…Read more
There are vaccines to prevent infectious diseases caused by bacteria (such as pertussis, pneumococcal), viruses (such as measles, mumps, rubella, influenza), and parasites (such as Malaria). Vaccines are also increasingly being developed to treat and not only to prevent. Preventive vaccines fall under four main types: Live-attenuated vaccines use a weakened (“attenuated”) form of the…Read more
How vaccines were invented? Why vaccines are important? Find out more about the history of vaccines, how they work and more information on the topic.
This blog entry was originally written for the Protect ERNs website. Please sign up here to support the campaign. EUPATI Alumna Maria Piggin, and Sophie Wintrich report: PRESERVATION OF THE UK IN ERNs – WHAT COLLABORATION MEANS FOR PATIENTS AFFECTED BY RARE BLOOD DISORDERS Maria Piggin, Chair of PNH Support, and Sophie Wintrich, CEO of MDS UK Maria Piggin…Read more
Note: This webinar took place on Monday 30th January 2017 – 17:00 to 18:30 CET. You can find the presentations used during the webinar below. Webinar introduction The Council for International Organizations of Medical Sciences (CIOMS) was established jointly by the World Health Organization (WHO) and the United Nations Educational, Scientific and Cultural Organization (UNESCO)in 1949 as…Read more
EUPATI, the European Patients’ Academy, closes its first phase as a project of IMI to now become a programme under the aegis of the European Patients’ Forum (EPF).
Welcome Marco Greco from EPF (European Paitents’ Forum), Pierre Meulien from IMI (Innovative Medicines Initiative) and Roald Nystad (EUPATI Fellow) explain why patient engagement, starting with patient education, is basic, and needs to be instituted throughout the medicines research and development process. Speakers: Marco Greco (EPF), Pierre Meulien (IMI) & Roald Nystad (EUPATI Fellow) Session 1…Read more
Evidence Based Medicine, Evidence-based Medicine (EBM)
This course has been crucial to my advocacy work. It has strengthened my voice as a patient advocate so that I can meaningfully engage with various stakeholders.
Having lived with Multiple Sclerosis for 10 years now and being an active blogger, I realized that patients are not well-informed.