While this new benefit-risk guideline opens a door to partner with patients for conducting preference studies and to structure patient-focused benefit-risk assessment, we cannot forget that there is a lack of obligation to put these guidelines into effect, and how exactly patient communities and their representatives can get involved in this?
The gap in research related to drug use during pregnancy means that doctors and patients may not have all the facts. Progress in this field is only possible if all stakeholders contribute – starting with all of us, along with the EUPATI Toolkit and website.
The fact of being able to count on a larger number of patients with better knowledge and comprehension of clinical trials principles and issues, can only benefit clinical research.
Desktop publishing (DTP) software enables the creation of documents on personal computers, revolving around document layouts, typography, and printing. DTP is useful in the creation of advertisements, brochures, magazines and books.
Patient information and counseling are the basis for successful treatment. The mechanism of this communication is an understudied area of research. Miscommunication can lead to suboptimal treatment, low participation in screening or slow recruitment to clinical studies.
Open-source alternatives like Office Suites (OpenOffice, LibreOffice, Google Drive), Word Processing like AbiWord, Presentations like Prezi and Flowcharting and Diagramming (Dia or Cacoo).
How have you used the Patient Education Toolbox? Let us know, with photos, videos, adapted materials…
Patients are more and more in the drivers seat and we have news from all over Europe on how patients are working with other stakeholders to redraw the lines of what and how is patient engagement.
EUPATI’s vision can be connected back to rights for patients. The right to be informed, the right to be educated, the right to be involved, the right to be seen as an equal partner.
Project Planning and project management – ProjectLibre, OpenProject and Trello – generally enables project planning with Gantt charts, timelines, task and resource management tools, and report generation.