When patients better understand how good quality clinical trials are performed and they can have a role in their design and conduct, serving to increase recruitment to clinical trials in Switzerland and Europe-wide. EUPATI materials can serve as the basis for training courses aimed at specific patient groups and contribute to the advancement of citizen science in general.
I am one of this year’s students learning to translate medical-speak to meaningful, accessible and reliable information. This knowledge needs to be made accessible to everyone. Cue the Patient Advocate Toolbox!
National team activities on patient engagement in many European countries.
The processes of patient involvement in industry medicines research and development have evolved, but the evolution of frameworks, mechanisms, metrics and processes happens individually without much alignment and sharing.
EUPATI has successfully raised additional funding. We are delighted to announce that the Patient Expert Training Course will run in 2017/2018, sustaining EUPATI as an independent educational programme.
The involvement and feedback of multiple stakeholders is essential in developing meaningful communications initiatives. Inspired by patient insights, this has been EUPATI’s approach and has resulted in impactful tools that have been developed by patients for patients.
Viewing videos (media players), screen recorders like QuickTime and Icecream, Video editors like Lightworks and Windows MovieMaker, Video conversion and compression like Miro, and Video hosting (YouTube, Vimeo, Wistia).
We need to be fast, efficient and professional even though resources may be limited. These new and start-up technology platforms for our work are usually either free of charge, or at least cheaper in an initial period: they are reliable and can satisfy our professional needs.
Learning and self-education are key. Knowing more about your disease and its medical and social background is not only empowering but also allows you to make a meaningful contribution to society.
EUPATI national activities in many of our local chapters – Ireland, UK, Austria, Italy