Este año, soy uno de los alumnos que intentarán aprender a traducir la jerga médica a información inteligible, accesible y fiable. Estos conocimientos deben ser accesibles para todo el mundo. En breve, dispondremos de un conjunto de herramientas para la defensa del paciente.
Acerca de Joan Jordan
Joan Jordan has been diagnosed with Multiple Sclerosis for over six years. She has accepted her chronic illness and wants to help make life better for the 9000 Irish people with MS. She is using her experience of over a decade working in IT, participation in a clinical trial, communication skills, EUPATI patient advocate (AKA, Expert Patient) training, her time living abroad and most importantly knowing how it feels to have an illness for which there is currently no cure to help find one. “I don’t want to stand on the side lines and cheer the researchers on. I want to play!"