Quando i pazienti comprendono meglio in che modo sono effettuati gli studi clinici di buona qualità possono giocare un ruolo nel loro disegno e nella loro conduzione, essendo di aiuto per il miglioramento dell’arruolamento negli studi clinici in Svizzera e in tutta Europa. I materiali di EUPATI possono servire come base per corsi di formazione mirati specificamente a gruppi di pazienti e contribuire al miglioramento della citizen science in generale
Karin Holm
Karin Holm is a breast cancer survivor and created the Swiss non-profit association Patient Advocates for Cancer Research and Treatment (PACRT) whose goal is to bring the patient perspective into all aspects of cancer research and treatment by placing informed patient advocates onto cancer-related decision-making bodies. She works for the Council for International Organizations of Medical Sciences (CIOMS) as a technical colloboration coordinator for multi-sectoral expert working groups on topics concerning drug safety and b
Info Karin Holm
Karin Holm is a breast cancer survivor and created the Swiss non-profit association Patient Advocates for Cancer Research and Treatment (PACRT) whose goal is to bring the patient perspective into all aspects of cancer research and treatment by placing informed patient advocates onto cancer-related decision-making bodies. She works for the Council for International Organizations of Medical Sciences (CIOMS) as a technical colloboration coordinator for multi-sectoral expert working groups on topics concerning drug safety and bioethics. Karin is the first patient representative to serve on a Swiss cantonal ethics committee/institutional review board.
