Index
The European Patients Academy on Therapeutic Innovation (EUPATI) project, the content it produces, and the EUPATI.eu platform are the products of a pan-European public-private partnership of diverse stakeholders, involving patients and patient representatives, academia, regulatory bodies, independent government institutions, non-profit organisations, and pharmaceutical companies.
We would like to thank the following contributors:
Consortium Partners
Patient Organisations
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European AIDS Treatment Group |
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European Genetic Alliance Network |
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European Patients Forum |
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European Organisation for Rare Diseases |
Non-Profit Organisations
Academia
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Biopeople (University of Copenhagen) |
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Hibernia College |
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The University of Manchester (Nowgen) |
Industry
Advisors
- Anke Steckelberg – University of Hamburg
- Britta Lang – German Cochrane Centre
- Dagmar Friese – German Ministry of Health (BMG)
- Kathy Oliver – International Brain Tumour Alliance (IBTA)
- Ingvil Sæterdal – Norwegian Knowledge Centre for the Health Services; EUNETHTA
- Jean-Jacques Cassiman – Catholic University of Leuven
- Jozef Glasa –Slovak Medical University
- Karen Facey – University of Glasgow
- Munir Pirmohammed – University of Liverpool
- Peter O’Donnell – European Voice
- Victoria Thomas – National Institute for Health and Clinical Excellence (NICE)
- Vincenzo Costigliola – European Medical Association
- Ysbrand Poortman – World Alliance of Organizations for the Prevention and Treatment of Genetic and Congenital Conditions; International Genetic Alliance of Parent & Patient Organisations
Regulatory Advisors
- Anne-Isabel Roth – Bundesinstitut für Arzneimittel und Medizinprodukte (BfArM)
- Birka Lehmann – Bundesinstitut für Arzneimittel und Medizinprodukte (BfArM)
- Cordula Landgraf – Swissmedic
- Isabelle Moulon – European Medicines Agency (EMA)
- Jan MacDonald – Medicines & Healthcare products Regulatory Agency (MHRA)
- June Raine – Medicines & Healthcare products Regulatory Agency (MHRA)
- Luca Pani – Italian Medicines Agency (AIFA)
- Petra Dörr – Swissmedic
Ethics Panel
- Anastassia Negrouk – The European Organisation for Research and Treatment of Cancer (EORTC)
- Andrea Heckenberg
- Bob Wilffert – Rijksuniversiteit Groningen
- Cees Smit – European Genetic Alliances’ Network (EGAN)
- Claudio Castegnaro – Fondazione Paracelso Onlus
- Frank Wells
- Inez de Beaufort
- Pedro Montellano – GAMIAN
- Tanja Krones – University of Zürich
Consortium Contributors
- Alastair Kent – European Genetic Alliances’ Network (EGAN)
- Alberto de Oliveira – Farmaindustria
- Alexandra Williams – Roche
- Amelia Martín Uranga – Farmaindustria
- Amy Hunter – European Genetic Alliances’ Network (EGAN)
- Aoife Gallagher – Eli Lilly
- Anastassia Negrouk – The European Organisation for Research and Treatment of Cancer (EORTC)
- Andreas Schmitt – Chiesi
- Aneta Poznanska – Novartis
- Annamarie Dillon – Genzyme
- Annick Lacroux – Sanofi
- Antonio Párraga – Esteve
- Barbara Haake – Verband Forschender Arzneimittelhersteller (VFA)
- Bella Starling – Nowgen
- Birka Lehmann – Bundesinstitut für Arzneimittel und Medizinprodukte (BfArM)
- Brigitte Franke-Bray – DIA
- Catherine Levinson-Bates – Merck KGaA
- Cecilia Cariño Morales – DIA
- Celine Lewis – European Genetic Alliances’ Network (EGAN)
- Christine Mullan-Jensen – Novo Nordisk
- Cor Oosterwijk – European Genetic Alliances’ Network (EGAN)
- Cornelius Erbe – Verband Forschender Arzneimittelhersteller (VFA)
- Cristina Moro – Esteve
- Daniel Gil – Farmaindustria
- Danielle Flores – European Patients Forum (EPF)
- Daphnee Pushparajah – UCB
- David Haerry – European AIDS Treatment Group (EATG)
- Detlef Niese – Novartis
- Dominique Roome – Sanofi
- Donald Husereau – International Society For Pharmacoeconomics and Outcomes Research (ISPOR)
- Dr. Petra Dörr – Swissmedic
- Eibhlin Mulroe – The Irish Platform for Patient Organisations, Science and Industry (IPPOSI)
- Elsa Branco – Novartis
- Elzbieta Talarczyk – Bristol-Myers Squibb
- Ewa Kiersztyn – Infarma
- Fanny Senez – European Forum for Good Clinical Practice (EFGCP)
- Francois Houyez – European Organisation for Rare Diseases (EURORDIS)
- Giorgio Barbareschi – European AIDS Treatment Group (EATG)
- Giulio Corbelli – European AIDS Treatment Group (EATG)
- Grainne Crowley – Eli Lilly
- Heidi Scherz – DIA
- Henri Caplain – Sanofi
- Holger Maria Rohde – Merck KGaA
- Iciar Sanz de Madrid – Farmaindustria
- Ilaria Piuzzi – Janssen
- Ingrid Heyne – European Forum for Good Clinical Practice (EFGCP)
- Ingrid Jenisch – Patvocates
- Ingrid Klingmann – European Forum for Good Clinical Practice (EFGCP)
- Inkatuuli Heikkinen – DIA
- Irmi Gallmeier – Roche
- Isabel Ashburner – Hibernia College
- Jan Geissler – Patvocates
- Jeremy Whitty – Hibernia College
- Jessica Paciej – DIA
- John Lenehan – Hibernia College
- Joseph Lama – Amgen
- Jytte Lyngvig – DIA
- Kamila Kozbial – Novartis
- Kay Warner – GlaxoSmithKline
- Ken Rogens – The Irish Platform for Patient Organisations, Science and Industry (IPPOSI)
- Kim Crescenzi – GlaxoSmithKline
- Kim Wever – European Genetic Alliances’ Network (EGAN)
- Krzysztof Kaluzny – Infarma
- Laurence Vroye – UCB
- Liuska Sanna – European Patients Forum (EPF)
- Luca Tolda – Merck KGaA
- Ludivine De Menten – UCB
- Lukasz Sedrowicz – Bristol-Myers Squibb
- Magdalena Tonder – UCB
- Maria Mavris – European Organisation for Rare Diseases (EURORDIS)
- Mario Scuri – Chiesi
- Martin Wright – Amgen
- Mary Uhlenhopp – Amgen
- Mathias Schuler – Pfizer
- Matthew May – DIA
- Matthias Gottwald – Bayer
- Michael Hamann – Amgen
- Mike Hardman – AstraZeneca
- Nadia Naaman – International Society For Pharmacoeconomics and Outcomes Research (ISPOR)
- Nancy Hamilton – European Organisation for Rare Diseases (EURORDIS)
- Nicola Bedlington – European Patients Forum (EPF)
- Nicole Schroeter – Patvocates
- Niels Westergaard – University of Copenhagen (Biopeople)
- Oleksandr Martynenko – European AIDS Treatment Group (EATG)
- Olga Krylova – Pfizer
- Patricio Múrias dos Santos – Merck KGaA
- Pawel Wakor – Infarma Poland
- Per Helboe – University of Copenhagen
- Per Spindler – University of Copenhagen (Biopeople)
- Randi Krogsgaard – University of Copenhagen (Biopeople)
- Rob Camp – European Organisation for Rare Diseases (EURORDIS)
- Robert Kroes – Eli Lilly
- Roderigo Sanchez – DIA
- Roslyn Schneider – Pfizer
- Roz Round – Roche
- Silvano Berioli – European Forum for Good Clinical Practice (EFGCP)
- Silvia Cammarat – Italian Medicines Agency (AIFA)
- Solange Rohou – AstraZeneca
- Sophie Vanalethem – UCB
- Søren Eik Skovlund – Novo Nordisk
- Stéphane Lejeune – The European Organisation for Research and Treatment of Cancer (EORTC)
- Su-Gwan Tham – Nowgen
- Susan Parsons – Nowgen
- Susanna Leto – Novartis
- Susanne Neustadt – Pfizer
- Tamara Al-Dihiassy – Novo Nordisk
- Tamás Bereczky – European AIDS Treatment Group (EATG)
- Toni Parraga – Esteve
- Virginie Delwart – Janssen
- Volker Barkmann – Boehringer Ingelheim
- Walter Atzori – European Patients Forum (EPF)
- Wolf See – Bayer
- Xavier Hormaechea – UCB
- Zaida Costa – UCB
Readability
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Luto is a healthcare communications company, specialising in producing user friendly communications through good information design. Backed by over a decade of evidence based academic rigour – we understand how users interact, read and engage with healthcare products and information. Our methods are proven to enhance readability and usability in a variety of communications aimed at patients, carers, clinicians and academics |
Translation
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Lionbridge is a global localisation firm, combining language expertise and operational capabilities to engage with the global consumer with the greatest impact. |
Non-Consortium Contributors
- Agencia española de medicamentos y productos sanitarios (AEMPS)
- Ana-Maria Oltean
- Anne Chirkova
- Annemiek van Rensen (PGOsupport, Project Leader)
- Anne-Sophie Lapointe
- Antje Schütt – Technologie- und Methodenplattform für die vernetzte medizinische Forschung (TMF)
- Antonina Smolina
- Beatriz Silva Lima
- Bille Engstrøm
- Blanca Rubio – Asociación Madrileña de Lupus
- Bruno Gago
- Caroline Harmingnie
- Codruta Zabalan
- Cosmina Ungureanu
- Cristina Sampayo
- Claas Röhl – NF Kinder
- David Trigos Herraez
- Dominika Bijos
- Geanina Aprodu
- Hanna Milczarek
- Ioana Strata
- Ioana Tomus
- Isabel Vieira – Infarmed
- Joao Rocha
- Joanna Rybka
- Kinga Marcinek – Fundacja My pacjenci
- Lene Midjord
- Lotte Klim
- Mafalda Castro Ascensao Marques Videira
- Margaret Webb
- Marleen Kaatee (EUPATI fellow)
- Martin Gormsen – Leo Pharma
- Mercede Maderuelo – Federación de diabéticos españoles
- Michael Scherz – Scherz Pharma Consulting
- Miloš Stojković
- Mónica Casanova
- Moreno Busolin
- Olga Silva
- Paolo Gorgoni
- Pascal Doppmann
- Patrick Miqueu
- Paula Pinto
- Pia Andersen
- Petra Baddack
- Pim de Boer (Coordinator)
- Polina Afanasyeva
- Roberto Saldaña – Confederación de asociaciones de enfermos de Crohn y colitis ulcerosa de España
- Rozalina Lapadatu
- Sara Pérez
- Siobhan Gaynor – Molecular Medicine, Ireland
- Stan Mackowiakl – Federation of Polish Patients
- Tatyana Khan – ITPCru
- Vanessa Lyons – Health Products Regulatory Authority (HPRA)
- Witold Michalek – Federation of Polish Patients
