I have done two patient peer reviews for the British Medical Journal. The first, done before the EUPATI training, was deemed a very valuable contribution and they wrote to ask if they could use it as an example of excellence. But the 2nd, I was able to do better (and to understand the full…Read more
Doctors were not very clear in their communication about MS. I didn’t understand them. It was necessary to find easy and understandable Information. I focused on patient groups, looked for sites about patients’ rights. I started to collect all that know-how and started to sort out information, the good vs the bad. I realised how important patient information is. And I noticed that there was not much understandable and useful information for patients. Patient-level information is important for good decision-making.